How you can help

I have already talked about a treatment that is available in Europe that has shown to be quite effective on Neuronedocrine tumors, it is called LU-177. The cost with travel to get two outpatient treatments is approx. $40,000. The unfortunate part is it is made right here in the United States but the FDA has not passed it here. Here is a email address that you can write to them asking them to look further into passing this drug so that treatment here in the United States can be given. This treatment has shown great results in Europe for the last several years, It could cure me, It could extend my life, and it could give me longer quality of life. If you would please send out a email to Milinda.vialpando@fad.hhs.gov I would appreciate it greatly. Please pass it on to everyone you know. This would be a miracle come true if this drug could get passed thru the FDA in my lifetime. They are working on this in Texas somewhere but haven't even started clinical trials with it yet, Time is so valuable

Here are some reasons another poster cited on one of my cancer groups:
1) Effective for a larger range of tumor sizes than the very successful> IN-111.>> 2) Has been widely used to great advantage in Europe for a number of years,> with a very excellent record of safety and efficacy.>> 3) Many NET patients are going to Europe, on a regular basis, to get> treatments that could be offered here, and the financial incentive to keep> BOTH treatment funds AND the expenses of travel and lodcings in another> country IN the US should be very attractive. This also opens up treatment> options to the huge number of patients that MIGHT be able to go to Houston,> but could never afford to go to Europe.>> 4) The carcinoid/NET community is working with the Houston area in drawing> up plans for a 'residence' for patients in this outpatient therapy, and the> FDA approval of a new mode of treatment will speed the process and show the> ability of the community and the country to reach out to those of all> 'stripes' of cancer.>> 5) I, personally, am counting on the LU-177 treatment to extend not just> the duration, but the quality of my life.> ---------->> So, if you've got a mind to do so, or are wanting the LU-177 treatment> without the overseas flight, or are just planning for the (distant, we hope)> future, drop Ms. Vialpando a note in the next few days. Ask your friends and> family to do the same.>> It's something that'll do us all some good. EVERY option is a GOOD option> for someone, and our goal should be to have as many options as possible!!

Here are some additional reading on this drug LU-177
http://jco.ascopubs.org/cgi/content/short/26/13/2124?rss=1

http://www.prrt.nl/index.php?lang=en