Saturday, February 14, 2009

just so tired

it has begun to be hard even off the lap top. I am pretty much bed bound. night time is so hard i just moan in pain, walk from the family room and try to get gas or the other out all night long. i long for actual sleep, though it is easier now that i have with the flo and most times the flo is day time. i still dont know how norm does it. woek is really been making it easy on letting letting him work partly at home, this helps alot. I am officially in hospice now, that means a nurse drops by 3 times a week, a bath girl comes by a couple times aweek, no more dr,blood work or additional medicine. They put in a pain pump in mystomach and can tune it higher with a magic wand, which can and does make me constipated and bloated, bad bloating, i also have bad swelling in mylegs and feet. not fun, they also installed a fluid pump so i can suction out fluids.ya its as gross as it sounds. been draining approox a 2 liter bottles wworth. my plan is to get stromger for more treatment bit i know in my heart, its not gonna happen, God has given me so many miracles, he keeps me here now. i am so proud of myfamily and friends formaking sure i am not by myself. thank u blog posters your words help me evry day....too tired have to stop now, happy valentines day

17 comments:

Anonymous said...

Tami - Happy Valentines Day to you ... I hope you had lots of sweethearts (your family) and of course your biggest fan and sweethear, Norm with you today. I keep you in my prayers. I hope to visit with you next week.

Blessings
Nanc

Anonymous said...

Tami: I'm keeping you in my prayers. You're such a fighter. I pray you will be able to get some quality sleep. I think you'll feel better. Wish I were there to help out. Happy V day to you too. Love and hugs, Patti in AR

Anonymous said...

Hey Sweetie...so good to hear from you. I'm a day late because sometimes things don't update til the next day here in the boonies but I hope you were able to spend some good time with your loved ones yesterday.

I'm counting the days for you til Norms parents arrive. I hate that things are as bad for you as they are and continue to pray for you and your loved ones with emphasis on strength and sleep for you.

I ran across some of our old emails this morning...I never delete anything LOL. Those were wonderful times when TSR was still around and we were just getting our businesses started...ahh the things we worried about. It's a wonder I didn't quit. If you hadn't figured out the ugly white spot problem I'm sure I would have....thanks so much.

Hang in there girlie...Norm's mom will be there soon with some TLC....love, Brenda

Anonymous said...

My heart does a zing when I see a new post from you. I am so proud of you, and always will be. You have taught me much in these past months. This monster disease has never been able to take a nibble of your spirit, strength or soul. You are still strong as an ox - sorta like Paul Bunyan!

Am sending hugs and kisses - just because!

from Rosemary

Anonymous said...

Tami and Norm.

I picked up my ticket yesterday I will be there for you guys feb 27th 28th march 1 and 2nd.

Love always
Your Bro Shane.

Anonymous said...

I saw the blog by your daughter-in-law in the colon cancer alliance. My heart goes out to you and your family. I will keep you in my prayers. I joined Colon cancer alliance because my son (age 31) was diagnosed a year ago as Stage IV. Life is a roller coaster as you well know, but every day is a blessing.

I hope you have been able to get some pain relief and some much needed rest. God bless you.
Nancy

Anonymous said...

Tami...what a loving woman you are...always worring about Norm...you have taught us so very much~blessings~

PS. could someone post Tami's daughters' blog address...thanks.

Anonymous said...

Tami, that is so like you to think of others befor yourself.Happy Valentines Day to you. Keep fighting girl. You and the family are in my thoughts and prayers , I love you girl.


Debora Aka: Deb

Anonymous said...

Tami - I'm thinking of you and praying for you. You have been SO strong and determined...bless you. I'm praying for your rest at home and praying that Norm's parents will arrive soon. I hate what this nasty disease has done. Your strength is in the Lord - and I'm praying that HE will show himself to you in every step.
Shelly

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Anonymous said...

I keep checking back often to see what is happening with you -- I wish I lived close enough so that I could just drop by to help out. I keep hoping you'll try the DCA treatment I wrote about before and that it works for you...
Wishing you all the best,
the lounge queen

Kristi said...

Hey guys...I am the daughter in law...I don't have a blog about our journey w/ Tami's cancer. Just posted for some advice w/ some of her pain on a forum for advice after talking to the CCA I believe. So it's just one post from a month or so ago...not much to read!

Love you, Tam!

K

Kristi said...

Hey guys...I am the daughter in law...I don't have a blog about our journey w/ Tami's cancer. Just posted for some advice w/ some of her pain on a forum for advice after talking to the CCA I believe. So it's just one post from a month or so ago...not much to read!

Love you, Tam!

K

Anonymous said...

Tami: I hope that you are getting a little more rest as I write this blog. It is so important to get rest. it makes a huge difference.this is great that Norm gets to be home with you more. I bet you are counting the days until his parents get home. it will be so exciting to see them again for all of you. they are such wonderful people just like thier son. have a restful pain free day. Love and prayers to all of you. Barb and Dale

Anonymous said...

Hi Girl, Lizzie here. I am praying so hard that your pain eases. I hated seeing the pain monday when they drained you. Please remember you are not alone and that when you are in alot of pain cry out for the lord. I am so very glad I get to be with you on some days. I am praying so hard for you. Moms prayer group wants to come see you. They and so many people are praying for you and are inspired by you. You my dear tami have touched soooooooo many lives in a positive way. Keep praying and believing . In just a few short days norms mom and dad will be there. I am so glad for you and norm they are able to come. Deb and sherri hello call me if you can.
Ilove ya tami.
Love lizzie

Kristi said...

I pray for rest and vanishing pain for the weekend for you, Tami...Going to be a long one, working all 3 days, but will catch up w/ you on Monday!

Love ya!

Anonymous said...

Tami: have been thinking of you alot lately. so glad that Norm is able to do some work at home. sounds like it is just a matter of hours now until Norm's parents get there.I am sure will will enjoy thier visit a lot. Love Barb and Dale